I am a poor person, a patient with an incurable disease.
I have been troubled by the idea that if we create a patient organization that only manifests social problems and does not aim to solve them, then it is a poverty business since we define poverty business as a business activity that makes profits by taking economically impoverished and socially vulnerable people as customers.
we are not able to remove intractable diseases. So perhaps there is no such thing as a ‘social enterprise’ at the moment, which aims to combine social contribution and corporate profit through social change aimed at solving social problems (global issues).
What I am struggling with is that even if patients are represented, if there is no solution, then it is a ‘poverty business by poor people for poor people’. It’s about a business style where there is no solution, only disease awareness. It seems vain to only appeal to the fact that there are so many vulnerable people in society.
Some people try to force me to make that appeal. I feel that the system that is forced upon us by others “forces the poor parties to be inhuman”. Moreover, there is no compensation for it (meaning volunteer work). I feel tremendous resistance to the idea of working for free and having to show my misery.
However, if you ask me if I am not in the poverty business because I don’t like it, I can’t say no. I have been referring people to Michael J Fox and other patient advocates when there is no solution.
Now, I may be saying this in a bitter way, but can’t we treat patients as ‘disease experts’?
I then wanted to move towards ‘ending the disease’ and not being in the poverty business which only ends up in disease awareness.
MJF and PD Avengers members are all working to ‘end disease’ too.
Here is what Wikipedia says: ‘social enterprise’ may also be a convenient way of putting it.
I am always caught in dilemmas, trilemmas, and tetralemmas (omitted below) and told that I am not progressing and that this is another way of saying, “Why don’t we start with Agile, and with the poor business?” In discussions with tolerant theorists, they are dropped or told that they are ‘over the top’, or that they are ‘responsible for themselves’.
However, I think we are trying to be higher ground with the people involved and with each other.
I actually dislike the word ‘learning’ and the word ‘awareness’, which MBAs often talk about. I guess we are going to have a fight over this.
I would like to reiterate that I would like to aim to ‘end the disease’, not be satisfied with just learning.
But they also say that it is important to act. I understand this.
In contrast to this, I sometimes hate myself again for not being able to move.
It’s about time I had some company, but it seems I’m still forced to travel alone. It’s probably my fault that I can’t compromise, and there are people who say they are my friends but refuse to cooperate.
I’m probably going to end up in a one-person phase.
The concept of ‘poverty businesses’ was created to point to ‘the problem being the business models themselves.’ These business models are problematic not only because they are illegal, but also because the system forces the poor to be dehumanised.
Many companies and organisations engaged in poverty business characteristically pose as ‘social enterprises’. Social enterprises aim to combine corporate profits with social contribution through social change aimed at solving social problems (global issues). However, poverty businesses are the opposite of social enterprises, which make their profits not by ‘solving social problems’ or the like, but by ‘fixing social problems’.